I’ve looked at several web pages to compare symptom information. I feel the most comprehensive list is found at the site of the Society of Interventional Radiology. I’ll itemize them here and talk briefly about the ones that bothered the heck out of me.
- Heavy, prolonged menstrual periods and unusual monthly bleeding, sometimes clots. This often leads to anemia.
- Pelvic pain
- Pelvic pressure or heaviness caused by the bulk or weight of the fibroids pressing on nearby structures
- Pain in the back or legs as the fibroids press on nerves that supply the pelvis and legs
- Pain during sexual intercourse
- Bladder pressure leading to a constant urge to urinate
- Pressure on the bowel, leading to constipation and bloating
- Abnormally enlarged abdomen
Symptoms of my fibroids:
- Heavy bleeding. My clots were so huge they could star in their own late-night monster movie.
- Pelvic pain. It was torture every time my uterus was forced to expel one of the large clots. To relieve the pain, I would munch enough Motrin to fill a PEZ dispenser.
- Pelvic pressure and heaviness. I always felt bulky and full.
- Back pain. I could never quite get into a comfortable position.
- Bladder pressure/frequent urination. In the bathroom just about every hour during the night.
- Abnormally enlarged abdomen. Someone actually thought I was pregnant and congratulated me! (Although not funny at the time, I’m chuckling now.)
Wow, that looks pretty bad written out. It’s amazing that this was not enough to get me into a doctor’s office to take care of the fibroids once and for all. The thing that caused me to crawl in for help is the topic of my next post.
Note: I noticed on the SIR site that only 10 - 20% of women with fibroids ever require treatment. Well, I guess that just makes us special. 
[Added September 17, 2006] Deep vein thrombosis is a rare complication resulting from uterine fibroid tumors. For more information, please see this deep vein thrombosis post.
——————–
Related Posts:
What are uterine fibroids?
Uterine fibroid tumors and anemia?
Would somebody tell me how much these dang fibroid tumors weigh?
Sex and fibroids just don’t go together, now do they?
June 13, 2006 at 3:04 am
Hi. Just thought I would share my fibroid experience with you. I am now 38 years old and had my fibroids removed 8 years ago. I had quite a long surgery and felt great and had normal painless periods after that. Unfortunately, I just found out that they have grown back and look pretty much the same. Large (size of grapefruit) and gross. I certainly recommend having your children after your surgery, as they do tend to return and you don’t want to be like me and wait too long. The up side here is that if you were in pain like I was……leg pain, heavy painful period that actually made the fibroid expand and hit my rectum, and severe cramps…you will be happy to know things return to normal for quite a bit. I remember what a relief it was to have a period with no pain at all.
Anyway, like you, I am a “geek”, but I am a Network Engineer. I guess I can’t accept that the research is so slow and that my options appear to be about the same as they were 8 years ago, so I am now out looking for studies to participate in.
Write and ask me questions if you like.
Enjoy your life without the uterine aliens!!!!
June 13, 2006 at 5:07 pm
Hey, another geek! Cool.
Thank you for visiting and sharing your experience. I’m sorry for the return invasion of the “uterine aliens” but happy that you were able to have normal periods after your surgery. “I remember what a relief it was to have a period with no pain at all.” (sigh) It is so encouraging to read that statement from you.
It’s incredible that your options haven’t changed much after 8 years. That’s one of the reasons why I’m being so “inquisitive”. I want to know what’s going on. What’s available today? What’s right around the corner (clinical studies)? What’s down the pike (genetic, molecular, biochemical stuff)? I am hopeful that I’ll be able to dig up some good information to answer these questions.
I wish you well on your quest.
Take care.
June 20, 2006 at 11:19 pm
I just found out i had 2 fibroids last week, went to the er because of the pain and started bleeding clots like ive never seen, gross.
scared me enough to go to the er, and they did the ultrasound, I go to the dr.fri, im really nervous,but my back, right leg, and pelvic are in so much pain i can only lay here taking advil and a heating pad for relief.
I also have ovarian cysts and my right side feels ready to explode.
I just need something done and soon, i only hope they do something, i cant take much more, this is really screwing up my life and i go to work feeling horrible.
It does make me feel better to see im not alone, not that i wish pain on anyone, i really dont, but at least i know i have the same symptoms and im not crazy like some drs make you feel.
June 21, 2006 at 5:59 pm
I’m sorry about your severe symptoms. Glad to hear you are seeking help. Taking that step can be scary but think of it as moving forward. I didn’t know what to expect when I first started my treatment but I can say I am improving. There were a few days along the way that were discouraging but I just kept thinking that I couldn’t go back to the way things were in the past. I know you are nervous about Friday but you are facing this and taking control. Remember you have options and those medical professionals are there to help you. You deserve to feel better. I’ll be thinking of you.
You are not crazy…and you are definitely not alone.
June 22, 2006 at 2:21 pm
Hi, geekettes! I am a mathemetician myself, a nerd, but I care about my appearance anyway. several years ago, I was diagnosed with fibroids. There are between 12 and 20 of them, one the size of a canteloupe, another the size of a grapefruit, and others of various sizes and shapes (why do they compare them to fruit?)…maybe we should do a topological analysis of fibroid groups! Anyway, my abdomen is so large, that I needed to buy a size 16, then it was 18, and now size 20 (gasp!) to fit my abdomen, while the waist, hips, and legs of the clothing fit like loose clown-pants! Getting them altered does not help…the big abdomen shows when the waist, hips, and legs of the garment are taken in to fit. Although my ob/gyn’s (2 of them) diagnosed the fibroids, they insist that the bulge is due to fat, although I diet and exercise regularly, and have no fat elsewhere on my body. ***sigh*** Advice, anyone?
June 22, 2006 at 4:00 pm
Hello fellow geeks! System Analyst here. I can sympathize with you all. I too have fibroids. I’m only 33yo and this started to be a problem last year-suddenly. First the HEAVY bleeding/Huge clots. Then it lightened up. Now it’s back. Symptoms:
Urinary frequency (I’ve got a 7cm fibroid sitting on my bladder)
Cramping from hell (pez dispenser indeed!)
Back pain
Pelvic and abd heaviness/pressure
Three weeks of bleeding and clotting
Anemia plus a barely there ferritin level (I now get IV iron infusions)
and I feel soo bloated and enlarged. I was a 10 and I’ve enlarged to a 12.
I’ve got a UAE scheduled for a week and a half from now. I’m looking forward to having them suffocate to death, even if it sounds weird. Girls, have them treated to they will continue to treat you. Myomectomy or UAE. Find an IR, Reproductive Endocrinologist (RE) or experienced gyn surgeon to talk to. The RE is for those who want to continue with pregnancy after surgery. REs are usually experienced in reproductive surgeries and may have more experience getting your uterus back in the game. It’s a personal choice with whatever that you do, so schedule those consults!
June 23, 2006 at 1:19 pm
Geeks in the house. Nice.
BobbeeDee,
Wow. You are dealing with some big fibroids. Not sure why your docs aren’t making the connection between that and the size of your abdomen. As far as advice, I agree with Jennifer. This is a special problem that requires specialists. I am fortunate because my GYN is a GYN surgeon. He is all about moving my treatment forward. My IR feels the same way. Everyone deserves this. If you are not OK with your present situation with the fibroids, YOU DESERVE to talk to someone who will give you options. Specialists are the way to go.
June 23, 2006 at 1:26 pm
Jennifer,
I appreciate the info on Reproductive Endocrinologists. I’ve added it to my list of things I need to research and post about. Good to hear of your upcoming UAE. Thanks for your words of motivation and best wishes as you move forward with your treatment.
June 28, 2006 at 8:00 pm
Hi!
Any advice please? I am 43 with two beautiful daughters 9 and 10 born by c-section. I’m a bit overweight (not hugely) over the last three months I’ve had really bad periods, heavy with clotting and a huge swollen stomach - even my “fat” trousers don’t fit around the waist. Haven’t been to the doctor - worried about ovarian cancer. Could it be fibroids or cysts - any reassurance anyone?
June 29, 2006 at 4:49 pm
Your symptoms sound like my fibroid symptoms but the only way to know for certain is to go to the doctor. I know you are nervous about doing that. I will sound like a broken record but you deserve to feel better physically and not have this hanging over you. Seek help. This gives you options.
July 13, 2006 at 2:10 pm
Had first lupron shot on 6/17 after having a few months of heavy periods and clotting. also had the feeling of a very full stomach. although the bleeding has basicallly stopped(still have very slight bleeding) I was hoping after 3 1/2 weeks the bleeding would stop. I go for next lupron shot on 7/17 and hope this will stop the bleeding completely. I am going for a 3-6 month therapy with lupron before i am scheduled for any surgery.
July 13, 2006 at 7:56 pm
Just finished the draft versions of a series of posts on my personal Lupron experience. I apologize for not having them up when you visited. Will post them tonight.
[Edited to add Lupron posts.
That first Lupron injection in February
My second Lupron injection in March
The very last Lupron injection in April
How are you feeling after your Lupron injections? Any side effects?]
In a nutshell:
Spotted every day. Some days I passed clots. Some days I had cramps. Although technically you could say I stopped having periods, I didn’t stop bleeding during the 3-month treatment. It tugged at my sanity but I made it through. I could tell my anemia was getting better and that was the main reason for the Lupron. I felt stronger and had more energy.
I can’t say if your bleeding will stop. This will vary. Hold on to the fact that you are moving forward with your therapy. Some days I had to repeat that over and over plus listen to my “fibroid theme” (especially the last part of the song):
U2 - “Stuck In A Moment You Can’t Get Out Of”
Thanks for visiting and commenting. I wish you well as you continue with the Lupron.
July 26, 2006 at 1:20 pm
Hi there,
My mother has been diagnosed with a soft ball sized fibroid tumor, she is scheduled for a hysterectomy (minus ovaries if the dr. can let them be) on Monday. We were discussing it and wondering how much a softball sized tumor would weigh… any ideas? Presently her abdomen is about the equivalent of a 5 month pregnancy. I want to thank you for this website, I don’t believe either of us have thought that she might be anemic before reading here. She has very low energy, and although her periods are still on a pretty reg.routine, she does pass some very heavy clots. Thanks again!
[Edited by EclecticGeek. Visit the fibroid weight thread and follow geeks trying to answer this question.]
July 27, 2006 at 2:13 pm
Unfortunately, I haven’t been successful so far in my search for information on fibroid weight. Heard they can weigh several pounds but I can’t find anything that relates weight to approximate size.
Glad you found the site helpful. That anemia connection is not always clear. It went right over my head up until diagnosis. Felt so much better once corrected.
Sending best wishes and positive thoughts to your mother on her upcoming surgery. Happy to hear she is moving forward with a treatment plan. It’s good you are there to support her.
Thanks for your visit and comments!
August 3, 2006 at 8:17 am
It seems like all geeks (I’m an accountant in the UK) must be interested in the weight of their fibroid!!! I found out yesterday that mine is 15×10x10cm (melon sized keeping on the fruit theme!) and I would love to know how much extra that is putting on the scales for me! My weight has been all over the place since March (3 pounds on, 3 off, 4 on etc on a weekly basis) and I will really be glad when it is out of me. Unlike most people I don’t have any abnormal bleeding - I just feel like I am 6 months pregnant! Bigger boobs, massive stomach and needing the loo loads. I also have the added complication of having ulcarative colitis so I am really up the wall with that at the minute too!
Glad there is a place like this to talk to other people in similar situations!
[Edited by EclecticGeek. Yep. Finally added that fibroid weight thread.]
August 3, 2006 at 9:18 pm
I just do not understand why finding the answer to the fibroid weight question is so difficult. My fibroids weren’t (aren’t?) nearly as big as yours but I still want to know. So, I figure there must be some geek(s) out there who have published something. Some data, some calculation, some observations, something.
I’ve been hanging out at Google Scholar and PubMed typing in keywords to search (fibroid weight, weight of fibroids, fibroid weight calculation, etc.). Found a promising abstract that correlates uterine weight to uterine volume through a formula involving pi. The calculation worked for enlarged, irregular uteri. Unfortunately, the abstract is from 1996 and the online journal only has full-text articles from 1998 forward. Arg!
I think part of the problem is the shape. Fibroids aren’t perfect spheres so you can’t use some standard formula. Also, I can’t find a consensus on the composition. I hear uterine tissue but also collagen tangles. I’m sure the percentage of whatever is in there varies also compounding the problem. I will not give up. The answer is there and I’ll find it.
Excited that I’m getting hits and comments from other countries. We are all in this together. Thank you for visiting and posting! Happy you feel so comfortable here.
August 17, 2006 at 10:42 pm
has anyone experienced inguinal lymphadenopathy in connection w/ uterine fibroids?
August 18, 2006 at 2:24 pm
Had not heard of inguinal lymphadenopathy so I looked for a reference. For those of you who are also not familiar:
Lymphadenopathy (Wikipedia)
Lymphadenopathy (Merck)
(I got the Merck link from the Wikipedia page.)
You can try searching at PubMed if you’re looking for research papers.
Hopefully, someone with this experience and/or more information will post here. If you have additional questions or comments, post again or send me an email. Take care.
August 21, 2006 at 2:01 pm
Hi I used to be a database janitor so a quasi-geek. My current occupation involves growing grapefruit size fibroids and running to the bathroom every hour. Luckily no heavy bleeding, but I am smalled framed approx 95lbs these two grapefruits are like melons in me. Anyone had abdominal myomectomy? Also heard of the fibroids becoming attached to adjacent organs?
I am 37 and no kids but don’t want that option taken away from me, i know, i know mother nature will do that soon. but should still have a couple of good years. Anyone conceived after a myomectomy?
Ohh and doctor recommendation in New York City??
[Edited by EclecticGeek. Follow these questions in the Abdominal Myomectomy thread and finding a fibroid doctor thread.]
August 22, 2006 at 3:37 pm
Hello, yet another geekette here with a fibroid. I have questions and can’t find answers. I am looking for how much fibroids weigh. Anyone find that out? I’m 30, and just found out about my fibroid a few months ago. For the last year, I started having discomforting feelings — frequent urge to urinate, bloated tummy that hurts all the time like it’s full, and so on. I get sore necks all the time, occassionally swollen lymph in neck.I also suffer from allergies when I eat food — nothing in particular, just the act of eating sets it off. I attribute all this to the fibroid and perhaps toxicity from old food, I guess. I then tried changing my diet by limiting my intake of meat. I went vegetarian for a few weeks … what a difference it made. I nearly had no PMS symptoms (which I usually get severe PMS — just ask my boyfriend). I wondered if anyone else tried altering their diet ….and had any relief, if anything? Just throwing this out there. Best of luck to all of us. Oh, and my fibroid is in my uterus and they said it is 7cm. HOW FAST DO THESE THINGS GROW? THE DOCS DON”T TELL ME ANYTHING.
Sorry for yelling, but I’m frustrated by all this.
[Edited by EclecticGeek. Fibroid weight thread is pretty popular. Also, follow the fibroids and diet thread.]
August 22, 2006 at 4:07 pm
Nikki here again. Anyone know of a forum for us w/ fibroids to discuss our symptoms so we can compare with others? I’m wondering if there is some common theme amongst us … for example, I have suffered with some kind of scalp (flaky) problem for most of my 20’s (now 30). A doctor told me the swollen lymph I got in my neck was caused by the drainage from the scalp. The swollen lymph only happened once in the 10 years I’ve suffered from the scalp problem (to my knowledge). But I have had swollen glands many times in my neck (thinking its a different gland). But for the last year I’ve been getting soar/stiff necks and back pain every few months, usually around time of my PMS. It’s bizarre. I don’t mean to sound off on a different tangent. I’m trying to see if there’s some kind of connection to all this (food allergies, soar necks, get sick easily, always feeling down or never 100%, fibroid, flaky scalp, weight issues, the list goes on). Sounds like my immune system is very week, but what can be causing that? The diet change I did helped alleviate a lot of those symptoms. I make every effort to avoid processed foods and eat less meat, particularly red meats.
Here’s something about that lymphadeno… someone mentioned in an earlier post … http://www.aafp.org/afp/20021201/2103.html
(I’m still trying to understand what that entails)
[Edited by EclecticGeek. I started a Fibroid Forum here and also a new Fibroid Discussion O Group.]
August 22, 2006 at 4:08 pm
yikes, s/week/weak/gi ….
August 22, 2006 at 9:05 pm
El,
I consider everyone to be a “geek” about something so you’re OK. Here’s a link about abdominal myomectomy. Once there, you can read a little overview, what to expect, common concerns, and pros and cons. It’s the Mayo Clinic decision guide for uterine fibroids. Hopefully, someone who had one will also comment.
Myomectomy: Three Surgical Approaches (Abdominal, Hysteroscopic, Laparoscopic)
Don’t know about fibroids attaching the organs. I have heard of adhesions in association with endometriosis (uterine tissue that becomes implanted outside the uterus).
Endometriosis and Adhesions
As far as fertility, I did a post on robotic myomectomy. It’s supposed to be less invasive. Not sure how they determine who qualifies (size and/or location of fibroid?) but the woman in the story had a tennis ball sized one.
Get your fibroids on the dance floor and do the robot
Lastly (whew), I put the links to find doctors in NYC on the “About” page in a comment. In case you didn’t see it and for the benefit of others:
About The Geek
Hope this helps. Keep posting if you have more questions.
August 22, 2006 at 10:43 pm
Nikki,
Hi geekette! Can’t find a postive answer on the weight question. I hear some can weigh as much as 50 pounds but I can’t find ANYTHING that will tell me that (like in your case) a 7cm fibroid weighs “X” lbs. That’s what I want. Still looking.
How fast do they grow? From small to large, I would think over several years. From large to larger, I’m not sure.
Researchers are investigating various avenues looking for possible causes of fibroid development and growth. These include genetics, hormones, the immune system, and environmental factors. Don’t know of a direct link between a weakened immune system and fibroids but…
I will comment on the issue of food. I do believe that there are too many added hormones and antibiotics in the meat supply. Can’t believe these factors wouldn’t affect people over time. I “cleaned up” my diet about 12-18 months ago. Felt better but after a few months, I felt horrible. I’ve been slightly anemic for about 20 years. So, my periods were bad but I consumed enough red meat to keep me out of the danger range. Once I changed my diet, my body couldn’t keep up. Iron flowing out but not coming in = severe anemia. That’s what happened. Drastic situation that needed to be fixed. It’s amazing how, at the time, I didn’t string ANY of this together. So clueless. Hindsight really is 20/20.
The good news: Once again, I am making changes. Paying more attention to what goes in but taking into consideration my dietary needs. Less meat, more soy. Trying to eat more organically. Definitely, fresh over processed. Too much junk out there in stores. I know it’s taking a toll. How can it not? I think there is a connection between meat (esp. meat not organically raised) and fibroid growth. My opinion. I’m sure I’ll hear from representatives of the beef industry any day now.
*New Age Hippie/Bioscience Nerd now steps down from her soap box.*
Forums? I did lurk a little in the About.com forum several months ago. Haven’t been there recently. Link should take you to the Fibroid Tumor folder.
About.com Forum - Women’s Health - Fibroid Tumors
If anyone knows of a good forum, please post.
Thanks for the lymphadenopathy link. Great illustrations. I would have to dedicate some time to get a grasp of this topic. I understand it in general but don’t know nearly enough to make a substantial comment.
Thanks for visiting and commenting. Feel free to post anytime.
August 23, 2006 at 4:18 pm
Speaking of diet, does anyone else drink alot of soy milk (whoops, beverage!)? I drink about 325 mls per day (one and a half glasses) to keep my PMS sypmtoms at bay, and now I’m wondering if the phyto-estrogens contained in soy contribute to the growth of my fibroids? Any thoughts? I certainly don’t want to give up the benefits of soy, and my husband and children would agree!
August 23, 2006 at 7:12 pm
I was a vegan for 6 years of my life (from 19 to 25). I slowly became a meat eater again. Then started eating dairy again after about a year or 2. I’ve always altered my diet for the purpose of my health. I always thought I ate healthy. But in my quest to figure out how to lose weight, I found out that our food, particularly here in the U.S. isn’t so healthy. Between all the hormones and processed foods which strip out the fiber beneficial to a healthy digestive system, our health is destined to decline faster. I don’t know what link there is between this and fibroids.
These days, I focus on eating whole foods (non-processed, whole grains). I now can’t stand the taste of white bread/pasta/rice, etc. But the fiber is important in our diet, so I am sure to get it from whole foods. Additionally, I try to eat plenty of raw foods for the enzymes (fruits, veggies). I eat meat, but I try to eat more fish and very occassionally some red meat. Chicken every now and then (I’m just not crazy about it so much). But I shop at Harry’s or Whole Foods when I can so I can get the hormone-free meats and organic foods. When most of my diet is based on these foods, I feel great.
I don’t know much about soy. I only drank soy milk when I was vegan. I don’t drink it now. But I do like tofu every now and then (vegan habits are hard to break). I still won’t drink milk. I might cook something with some kind of dairy, like whipping cream. But I don’t do milk. Though I do eat eggs — hormone-free, grain fed, cage-free, etc.
Interesting, the stats on women with fibroids … I wonder if that is women of the U.S. only? Last year (2005), I went to the Basque Country (Pais Vasco) in Spain, where my boyfriend is from. Something that struck me as fascinating was that everyone was very thin. How envious I was. I could not find any pants to fit me there at all.
I’m a size 12 (usually a 10). I’m not that big! But, of course, I was big compared to everyone there. The diet there consists of a lot of meat (pork ham, sausage, steaks), seafood, bread, olive oil, and some veggies. A lot of “tortillas” (spanish omelettes) and fried foods. I was confused by this.
They have Jamon Serrano (ham), hanging in all the restaurants. That ham is served everywhere (its yummy too). The people smoke like chimneys and drink alcohol a lot (it seemed). My boyfriend told me the foods there are natural and fresh and have no hormones. I’d have to verify that; but the people looked great. Hardly any overweight people in sight. But I wonder what the % of fibroids in women are in Spain (or any other country for that matter).
August 23, 2006 at 7:42 pm
Found this, and it is interesting, but now sure how accurate it is.
http://www.wrongdiagnosis.com/u/uterine_fibroids/stats-country.htm
August 23, 2006 at 7:45 pm
Sorry to post a lot, but think this is a great site and thought it would hopefully be helpful to post about fibroids. Here’s a site I came across a few months ago when I first found out I had a fibroid. I think it has some good info to offer as well … http://www.uterinefibroids.com/
August 23, 2006 at 7:49 pm
One more ….
http://www.esi-topics.com/fibroids/nations/d1a.html
** Top nations with Fibroids **
(this may be better than the first on I posted)
This is not surprising!
August 23, 2006 at 10:16 pm
Brenda,
Thanks for visiting! Researchers (scientists, doctors) still do not have a definite answer on the phytoestrogen/fibroid question. Of course, I have links.
Etiology and Pathogenesis of Uterine Leiomyomas: A Review
Long but pretty interesting because they discuss the research on a bunch of possible risk factors. Fortunately, you don’t have to scroll down far to get to the “Diet” section. Third paragraph talks about soy. It says that “these substances generally act as weak estrogens, but they may also have antiestrogenic effects”. (They aren’t sure.)
MedlinePlus Herbs and Supplements: Soy
Look in the third paragraph of the “Background” section near the top.
“It is not clear if they stimulate or block the effects of estrogen, or both (acting as “mixed receptor agonists/antagonists”).” (They aren’t sure.)
But there are also statements like this:
What are phytoestrogens?
“Much remains to be learned about these plant products, including exactly how they work in the human body. Doctors caution that certain women need to be particularly careful before using phytoestrogens, especially women who have had or are at increased risk for diseases or conditions that are affected by hormones, such as breast, uterine, or ovarian cancer; endometriosis; or uterine fibroids.” (They aren’t sure so they tell you to be cautious.)
My thoughts:
I so look forward to the day when we FINALLY know what causes fibroids. When there won’t be a million and one unanswered questions. Until then, I love soy (milk, tofu, miso, edamame, you name it). I eat/drink it in moderation and don’t feel as though it contributed to my problems. I am actually more concerned about the cow’s milk I used to drink.
Soy seems to really help you. Monitor yourself for changes. Talk to a professional (this would include nutritionists) if you are really concerned.
August 23, 2006 at 11:32 pm
Nikki,
You always raise interesting points. I totally agree with what you say about food. Way too processed and way too many hormones. I was listening to something on television a few days ago. The speaker said that the food offered now sustains life but not health. We really must be careful in our choices.
I’m sticking that paper link from the previous comment here also:
Etiology and Pathogenesis of Uterine Leiomyomas: A Review
The “Diet” section discusses red meat consumption and a comparison between vegetarian and nonvegetarian premenopausal women. Stuff in there about how changing your diet can alter estrogen metabolism. Studies showed that a high fiber/low fat diet reduced estrogen levels. Also, relates digestion to this whole process.
There’s also a section entitled “Geographic Differences”. Most of the data is in reference to percentage of hysterectomies performed for uterine fibroids. It suggests that fibroids are common globally. I was surprised to discover that there aren’t very many studies looking at the prevalence of fibroids in other countries. Guess that’s why I couldn’t find anything in Google Scholar.
OK. That whole section of your comment talking about Spain made me hungry. I agree factors would include the way the animals are raised and the freshness of food. Hormones, antibiotics, pesticides. All of these things concern me when I think about my food. Must limit my exposure to these things. You mention some good tips.
I appreciate the links. Ended up finding some interesting papers from that last one. Thanks (as always) for your comments.
August 26, 2006 at 10:45 am
Hello, I was wondering if anyone can give me advice on having a c-section while carrying a large fibroid in the uterus with the baby. I am 28 and getting ready to have my first child. I have had a difficult pregnancy with my fibroid, it is 24 cm and completely blocking the birth canal. The doctors are concerned with me hemoraging and said the worse case scenario is that they would have to do a hysterectiomy if they can’t control the bleeding. I am worried I am going to wake up and not be able to have anymore children. Has anyone had this experience.
Thanks D
August 26, 2006 at 1:47 pm
Hello, I’m not much of a Geekette, but I too have fibroids. I found this site very interesting and informative and thank you eclecticgeek for running it for us. What I find interesting is that most of you seem to know how big your fibroid/s is/are. My gyn told me that I had a “good sized melon” but I assumed she meant my uterus, not just one fibroid. Now I think I’ll ask more questions and pay more attention to what she’s telling me. I too have developed symptoms over the past couple years. When I first found out I had fibroids, my doc told me I had several but I didn’t have any symptoms (that I was aware of). Since then my cramps have gotten worse and more frequent and before I knew it, I was having cramps 3 weeks out of every month. Once the bleeding got heavy (although no clotting) my doc put me on the birth control pill (I’ve had my tubes tied since I was 23 - I am now about to turn 42) so it’s funny that I have to take this pill everyday even though there is no chance of ever getting pregnant. Anyway, the pill has helped with the heavy bleeding but not the cramps. Now my symptoms have progressed to include severe back pain (I have a crushed disc and a herniated disc above my tailbone that haven’t bothered me in years) cramps all the time and a frequent feeling of always needing to urinate even though not much comes out! How frustrating that one is. I feel as though my lower abdomen has grown and I feel like I look pregnant although I am sure some of that is fat since I have gained weight. In the mornings, when I wake up, I can feel my fibroid… if I put my palm on my belly as I lay on my back, it’s as hard as a rock and about the size of a large grapefruit. Pushing on it, I can feel it pressure on my rectum. I’ve had uterine ultrasounds every six months for two years now and this last one, the tech told me I didn’t need to have the vaginal ultrasound because my uterus was so “protracted” - I think that’s the word she used - that it was useless and wouldn’t catch any pictures. So then my gyn calls with the results and tells me that my uterus has grown since my last test 6 mos prior. Since I am done with childbearing, I have decided I want to have a simple hysterectomy (only my uterus). I was hoping to be able to have it done vaginally or even liposcoptically but I don’t know if that is possible. The way my doctor talks, my uterus is huge, but I don’t know the actual size of it. My next appt with my doc is in October. I plan to discuss the option of Hysterectomy although she wanted me to try Uterin Fibroid Emolization. My feeling is that if I have to go “under the knife”, I don’t want the chance that it’s going to grow back and I’ll have to have another operation. I’ve been done with having children so I’d have no problem with the emotional side of not having my uterus anymore. I just don’t want to lose any sexual desire or feeling. Has anyone here had surgery on their fibroids? Thanks for listening, it’s great to have a place to chat with others who know what you are going through. My husband is great but he really doesn’t understand what I’m saying.
August 27, 2006 at 12:41 am
Danea,
Sorry you are having a difficult time with your pregnancy. I’m hoping someone with a personal experience will share. I did find a pregnancy message board that has a uterine fibroid section. There are posts about different experiences. Here is the link:
BabyCenter - Readers’ Comments - Uterine Fibroids
Post again to let me know if this link is helpful or if you have additional questions or concerns. Take care.
August 27, 2006 at 12:51 am
I am 40 years old and had surgery to remove the fibroids six years ago. However, they are back and I will be having a hysterectomy. My doctor tried to shrink the tumors with birth control pills, but the pills only caused more bleeding. Due to the tumors, I have never been able to have children, but I married a man that had a son whose mother left when the baby was 11 months old. That boy left for basic training in the Army last week. I sometiimes wish that I would have been able to have at least one child of my own, but that was not the hand that I was dealt and I feel that since I raised him, my stepson is my child. My hope is that someday, mediciine will find an inexpensive way to deal with this problem that will allow women more choices and a lot less pain.
August 27, 2006 at 1:44 am
Reds,
Everyone is a Geekette to me so you fit right in.
I appreciate the compliments. Glad the site helps.
You know I must leave a link. This is the decision guide at the Mayo Clinic site. It compares the different treatment options. Since you’ve decided on a hysterectomy, it gives information like the extent of surgery, what to expect, common concerns, and pros and cons. (It gives this for each option.)
Uterine Fibroid Treatment Options
I don’t know how much wandering you’ve done here. I have categories that contain my posts on various topics. Look in the right sidebar under “View The Geek’s Posts On”. You can also use the search box near the top. Most of the posts are on my symptoms, surgeries (myomectomy and UFE) and Lupron. I’m expanding to include other treatment options and fertility issues.
Thanks for sharing your experience. I think it’s important to know that you aren’t alone. I am happy you feel so comfortable here.
August 27, 2006 at 3:43 am
Eva,
Fibroids are a common problem but such a life-changing one. The treatment options are getting better but aren’t available everywhere and still involve making difficult decisions. So many factors to consider. No truly easy answer at the moment. Your hope for medicine is also my hope.
I appreciate you visiting and sharing your thoughts. Your stepson is definitely your child and one to be proud of.
August 28, 2006 at 9:40 pm
I can’t tell you how great it was to find this site! I’ve been doing a lot of reading about symptoms, recovery etc..and this is the most down to earth, realaxed site I’ve found….just what I needed, seriously. I’m having a myomectomy a week from tomorrow and have been trying to find information about recovery and such. I have all the symptoms everyone else lists and I don’t feel like such a freak now! No one I know understands really, I think they think I’m exaggerating or something (as if I could make this up!). It may seem so superficial but I’m wondering about weight gain after surgery? Anyone? And how long before you were up and going again? I have multiple fibroids, one being pendunculated and apparentely my uterus is “bulky”. One thing I also am slightly concerned about is that my doctor isn’t 100% sure that they won’t have to just remove my uterus instead of a myomectomy…that they won’t know until they actually perform the surgery which I have read could be true…but what are the odds? Any answers or experiences you have had would be much appreciated!!!!
Thanks again for having this great site, I don’t feel so alone anymore!
August 29, 2006 at 8:43 pm
Thanks for the kind words. Glad you feel so comfortable here. It’s hard for people to understand because sometimes it is surreal. Like it can’t possibly be happening. So, no. You aren’t a freak unless we ALL are.
My myomectomy experience was hysteroscopic and thus outpatient. Down time was limited. Weight gain/weight loss is something I plan on blogging about in the future ‘cuz I’ve had my “issues” but it was not a concern after my surgery. Not sure about the odds of hysterectomy. I do know this was also a risk for me with both my myomectomy and UFE.
Two ways to find my myomectomy posts:
1. Type myomectomy in the search box near the top and click “go!”.
2. Find the Myomectomy category under “View The Geeks Posts On:” in the sidebar (look to the right and scroll).
I’ll toss in the Mayo Clinic link about myomectomy in case you want more info:
Myomectomy (Surgical approach, What to expect, Common concerns, Pros and cons)
You are definitely not alone. Kick off your shoes and wander around a bit. Post again if you have other questions or concerns. Thanks for stopping by!
August 29, 2006 at 9:54 pm
I recently told someone that I never would have dreamed that this is what I would have to deal with, not that anyone imagines anything bad happening. Sadly Cancer immediately pops to mind in regards to something lots of people get and please do not take this the wrong way I am so glad it wasn’t that but to actually imagine you may lose your uterus…and at 33, it seems incomprehensible.
I hear you about “issues” so thanks for what you did say, it makes me feel better. I have a trip planned (planned for over a year now) for 3 weeks after surgery - 4 days in Miami and then 6 in Jamaica and as I mentioned…already have issues so I was kind of freakin’ out that it could be worse
I’m thinking that lying on the beach in a tropical atmosphere is not a bad way to recuperate…hopefully I feel up to the trip!
Seriously, your sense of humor is so great to come across, it’s refreshing and it humanizes everything a bit, you know? I checked out the posts - very helpful - and again thank you.
I will keep you update, perhaps my experience will be helpful to someone else. Take care!
August 30, 2006 at 2:24 pm
Someone asked about info on abdominal myomectomy (AM); potential of fibroid grwoing into other organs (bladder etc) surgery and recovery. I am on week 3 recovery from AM.. sorry its long but informative
Well I had all the classic symtpoms of fibroids and admonmysis (thickening of the uterine lining) - heavy 15 day bleeding, back pain, exhausted, buddy belly, cramps, clots, super frequest urination, anemic, weight gain and hard to lose weight etc. Went to my GNY and she ordered a MRI (time saver in lieu of the ultasounds and all the other diagnositc test docs do). Results showed HUGH fibroids all 3 kinds. Belly was at size of 5 months (needless to say I had already bought the dark color elatic waist breezy skirts by then in 2-3 x my size LOL)- typical “pear shaped uterus” extended up to my belly button. Grapfruit (here goes the fruit salad LOL) size pressing on the bladder, another on the back of the uterus pressing on my spine and colon) others all over… So my GNY referred me to a Fertility Specialist (Repreductive Endocrinologist) GNY Surgeon. FIND A DOC WHO HAS DONE AM SURGERY A LOT!!!! ASK ALL KINDS OF QUESTIONS because I am 39 and still want to have kids (Hubby and I have been trying for a while - but no luck because of the “broids). My doc was great and very detailed- been at it for 20 years, specializes in fibroids and fertility and never had a myomectomy turn into a hestorectomy (which was my biggest fear)- ran all the test and exams (endometiral biopsy to assue no uterine cancer, blood tests galore to check for all things including fertility, Urology Cat Scan to check for damage to bladder) to assure evrything was covered. NO other choice for me but AM. Doc was concerned there the ‘broids MAY be attached to other organs so he had me consult/informed consent with 3 other surgeons who would be “back up just in case” during surgery. Urologist (who put the stents in during surgery to assure bladder was not cut) and was there in case there was damage from the ‘broids since one was pressing on the bladder. The cancer GNY doc in case he got in there and there was cancer (Rare - firoids are typically uncancerous - whew didnt need him in the end) becaue my ‘broids had developed so quickly and the general surgeon in case the broids has grown on another organ (whew didnt need him either). Doc already told me I will need a C section to deliver- didnt bother me -as long as I can have kids I dont care how they get here.
2 days prior to surgery ate clear liquids and had “New Litely colon cleanser” - wasnt as bad as I thought. Surgery went well!! 5 hours and 2 hours to recover but I am fibroid free (long but I doctor is extremely careful). Doc first did a laprocspoic myo (through the belly button) to “Look around” . Then the “bikini” incision (about 8-9 inches which looks great already) in order to lift out the uterus and remove the “broids. He removed 6 (4 grapfuit size exterior) 2 apple size right under the lining of the uterus and one (forget that fruit size LOL) that had extended into the uterine cavity. He was REAL carful with that one not breach the uterus to much.
4 days in the hospital (could get up the next day so they could take that annoying catheter out and take off those leg cuffs they put on for circulation and I put on pajamas so I could get out of that ass out gown LOL), IV, antibiotics, made me do deep breathign exercises to assure you dont develope pnemonia. Clear diet for 3 days then soft foods (didnt really have an appitite anyway) Pain meds to manage pain and home to recover. Keep an eye on your tempature the first few days. Mine was up a bit first night or 2 but I was on Cirpo antibiotics for 1 week. One week follow up doc appointment went well - on track. Things are gong well - have to remind myself not to do to much (and I am not doing nothign really) Dont pick up anything over 5 lbs no driving yet (like I have somewhere to go), limit up and down the stairs, tender, sore still but getting better. After 2 weeks you will feel ok. I look ok but still healing inside. Feel sorta sad somedays but its normal as the super estogen pumpers (othewise know as the broids) hormones adjust back to normal. Now its week 3.Probably be another 3 weeks before I go back to work. Have follow up appointment after 2 periods to assure no scarring on fallopian tubes/ovaries/uterus (dye test forget the name). Doc recommends 6 months post surgery to try for kids. He notes fibroids can grow back but are more likely to regrow in younger woman than women over 35-40…but keep the weight down as estogren is produced in fat so the more fat you have the more the estogen pump is and that fuels firbroids.
Lots of women conceive after the surgery (that is why AM are usually done) IF there is no other kind of fertility issue with you our your mate (which is why I also picked a fertility specialist just in case it wasnt fibroids and the reason he ran all the fetility test prior to surgery). Literature and doc says 60-80% increase in ability to get preggers if fibroids were the problem and they are removed.
The surgery and recovery was worth it all. The pain I experienced over the months dealing with fibroids (I didnt wait long with the fibroid drama) is MUCH worse than recovering from surgery. I can see my feet again, bend to tie my shoes, no more back pain and my belly has shrunk!!
Check out OBGYN.net its a very helpful site as well with lots of links.
Hope this info was helpful
[Edited by EclecticGeek. Please visit the Abdominal Myomectomy thread for more AM experiences.]
August 30, 2006 at 2:29 pm
A few more things
I took iron supplements (get the Slow release ones they dont cause as much consipation) becuase the tiredness if often anemia and I gave blood for sugery just in case.. Didnt need to use it at all
Doc recommended against Lupon (to shrink) as they shrink typically 30% over 3 months. Plus the idea of temporary menopause was not somethign I wanted to do. ie if you have a 10 cm tumor and you reduce it to 7 cm what is the point ??
August 30, 2006 at 8:19 pm
Ally,
I understand what you are saying. It does cause one to pause. I actually knew hysterectomy was a possibility before my fibroids were even detected. At least a couple of women in my family have had hysterectomies for fibroids. I decided to put that option at the end of my list. It is great for those who want it and necessary for those who must have it but there still should be other choices. I want women to learn all they can and embrace the treatment that is best for them whatever that may be.
I’m glad that my sense of humor is of use now. My family taught me well.
Wow. Your trip sounds terrific. Enjoy yourself!
Please keep us updated. All experiences are helpful. Take care.
August 30, 2006 at 9:08 pm
fibroid free,
Thanks for posting a detailed account of your experience. You are now my abdominal myomectomy reference! I appreciate you adding humor because I can always use a chuckle.
Here is a live link to the site “fibroid free” mentioned earlier. They also have a forum.
OBGYN.net
Fibroid Forum
Thanks for the information!
August 31, 2006 at 2:19 pm
EclecticGeek
ah geee…I feel…so…honored…Hey feel free to ask Abdominal Myomectomy questions anytime…I got all the details, tips, questions to ask your doctor and personal experiences you need ….I would take a bow but although I can see my feet again its still hard to bend over
This is as a GREAT site and I am glad I found it…wish I found it earlier but if I can help shed light on anything I will. There are a lot of women out there that are experiencing the same thing and going crazy with no on the talk to. I know I did…I just had to read everything and anything dealing with fibroids..that keep me sane (well…the peanut gallery (ie Hubby) is still out on that assessment)
I too looked for fibroid weights (the only question my doc foo-fooed me on…yeah reminds me to ask him for those weights on the next visit - I know he has that now)- My back told me the ‘broids weighed 10 -15 pounds, my feet said 8 lbs LOL. So here is what science/weather geek found to date - tried the geeky math calulations…Volume (V) = LxWxH ok then Mass=Vp (vol x density) ok but how do I get the density?? CLass time to put your pencils down and turn off the calculators….AHHH I am not finished YET!!!! Then I searched some clinical abstracts and I did find a couple of abstracts listing average weight in surgery comparisons….this is fuzzy science from a Microbiologist/Biochemist so dont kill the messger… it was noted that an 9 cmx 3 cm ‘broid was listed on average as 350-400 grams. Ok so 1000grams = 2.205 lbs or 1 g = 0.002205 pounds (lbs) sooo….. 500g = 1.1 ilb; 350 g= 0.77 lbs and 400 g = 0.88 lbs
again fuzzy math and it all depends on how DENSE the ‘broids are but its a good estimation…I guess….
September 1, 2006 at 5:28 pm
Thanks for being a resource. I’ve just started posting questions plucked from comments. It’s taking longer than I thought but I will have an abdominal myomectomy question up soon. That way, people with AM questions can ask in that specific post and people with AM answers (like you!) can respond. Will also create a FAQ page to make it easier to find the questions.
[Edited to add: FAQ page is now the Fibroid Forum.]
OK. Fibroid weight. I think you’ve helped us to get a giant step closer! I made a comment here about finding an abstract that involved pi. When I started reading what you said about volume, it clicked. Density is a problem but also shape. Women are getting different dimensions for the fibroids. Some get three (i.e. 7cm x 8cm x 9cm) and can use the formula you provided. More rectangular I guess(?). Some get only one (i.e 6cm) and would need the formula for a sphere (hence pi). For two dimensions (i.e. 9cm x 3cm), maybe use a cylinder calculation(?) that also requires pi. Anyway, I’m working on a post about it with lots-o-links including a neat online calculator that determines volume. Hopefully, we can get a discussion going.
I’m so glad you found the blog! When I was going through some of this stuff, I kept looking for a personal and informational yet humorous site. Decided to start something to get my thoughts out there. Cool and tickling that other women can relate.
September 3, 2006 at 3:38 pm
Hey there,
This web-site is GREAT!! Refreshing to find a site about fibroids that cuts out all the medical jargon and isn’t looking to sell some miracle supplement.
I’m 28 and just found out that I have a fibroid behind my uterus (4.7cm). The doc suggested going in to get it checked out again in November (to track growth) as my husband and I want to try to have kids soon. I was just wondering if any of you have done research on diet concerning fibroids besides wha’t listed above or could recommend any sites.
I eat almost 100% organic and try to limit my intake of meats and dairy products. I don’t have any symptoms, but am trying my best to take the preventive medicine root as I understand that I’m relatively young to have developped fibroids and figure that it has plenty of time to grow.
[Edited by EclecticGeek. Please see the fibroids and diet thread.]
September 3, 2006 at 7:39 pm
Hi,
I’m in the process of posting questions to make it easier to find answers. Soon, there will be a post on diet and fibroids with the links you’ve seen here. That way, people with specific info can comment there.
[Edited to add: fibroids and diet thread is up. Please visit.]
In the meantime…
A few days ago, I did find something on WebMD. I was looking for general fibroid stuff but the article also contained info on diet and herbs. If you scroll to the bottom of page 3, you’ll see a section called “What to Eat”. Page 4 has herbal information. The article talks about meat/dairy and estrogen production. I’m familiar with this. Had not heard of vitamins, herbs, and the role of your liver in conjunction with fibroids. I guess that would fall more under alternative therapy but I’ll include it here. You can skip it if you’re just interested in food.
I cannot recommend the supplements per se but I will pass along the information. My advice is what I plan on doing when I get a spare moment. Read through the WebMD info. Check out the supplements using sites like Medline Plus or NCCAM. Search on PubMed, PubMed Central, or Google Scholar if you want to find research papers on these supplements and their effects on fibroid growth. (Finding papers in this area would be exciting indeed.)
Diet and Fibroids (WebMD)
Herbs and Fibroids (WebMD)
Drugs, Supplements, and Herbal Information (Medline Plus)
Dietary and Herbal Supplements (NCCAM)
PubMed
PubMed Central
Google Scholar
For those interested in herbal supplements, remember to do your research and talk to a health care professional before making any major changes.
Hopefully, others with fibroid diet information or experiences will add comments. I’m so happy that you aren’t dealing with symptoms and taking steps to be proactive. Glad you found the site and you like it. That means a lot. Post again if you have additional questions or thoughts.
September 3, 2006 at 10:25 pm
Hello, I have a fibroid on my right side, I have experienced horrible pain…. A month ago I had to be rushed to the doctor it felt like I was having contractions…. Has anyone experienced this type of pain. I am having a hysterrectomy in a week, anyone have pain like this and has had luck losing weight or at least has the abdomen gone down in size. I have a very enlarged uterus. I hope I see good results and feel better.
September 4, 2006 at 1:04 pm
Hi BOOBOO,
(I removed your previous post because it appeared to be duplicate. I hope that’s OK. Just wanted you to know.)
I experienced a tremendous amount of pain (cramping) when my body was trying to expel very large blood clots. My uterus would contract to force the clots out. The pain from cramps can be horrible.
I do not have a personal hysterectomy experience. I’m working on getting things more organized here so people with experiences can connect with people with questions. I see weight loss is a popular topic. I will dedicate a future post or two (or 3) to cover this as well.
It is good that you have sought treatment. I also hope your results are positive and you feel better. If you have additional comments, don’t hesitate to post them.
September 5, 2006 at 2:54 pm
wow, interesting. I’m going in for AM tomorrow. I have one 9 cm fibroid in the lining of my uterus. Classic pains. I am on Lupron (2nd month) and apparently it did shrink my fibriod some, but it did NOT stop my menstruals. In fact, as of today I am on day 15 of a lighter than normal period but a 15 day period nonetheless :(. Of course, what happened, this gave me a low blood level so I may have to have a transfusion, but I just can’t wait to get this all done. Reading fibriod free’s extensive post made me less nervous about the surgery. Yay.
September 5, 2006 at 5:41 pm
one day to go…glad my ramblings helped make you less nervous about sugery….things will go well for you!!!
Here are a few post- surgery- in- the -hospital tips….
1) Try to get out of that hospital bed ASAP even if you stand for a while! if you do that they will take the catheter out and you will get your circulation going. Dont wait for the nurse to ask you…ask her/him “Can I get up now?”
bring something for a headache (non aspirin) I got a plain ole headache and plain ole mortin was not on the docs order…
2) I hovered for a while to pee…was more comfortable than trying to sit down and get up..(hell I already had to drag that IV pole with me)…they may make you pee into the “hat” (plastic thing on toilet to collect urine) to continue to measure your urine output for a day or so post catheter
3) when you stand up DONT lean over -try to stand straight up with shoulders back (not quite like ballet class) it hurts less if you dont crunch those non working abdmonial muscles
4) of course have a pillow to press against your belly to cough/laugh (my hubby keep cracking jokes)
5) bring some EXTRA strength GAS X - that will really help with the “truck driver winds”…and will help you feel better…its hard to fart when those fart muscles dont work so good. walking helps too. The gas will last for a few weeks as your insides get back to normal
6) If you feel nausea from pain meds (I only got nausea once for a few minutes)- quickest way to help that is a cold towel on the back of your neck (anti nausea meds may not be prescribed by your doc then you have to wait for the nurse to get the doc to allow it and its 2:30 in the morning yada yadda…ice cold towel on back of neck
7) speaking of 2 am - they check your vitals a LOT expecially the first 2 nights….felt like every hour (arent we suppose to be getting sleep??? …)
9) take the pain meds and dont let yourself get in pain - its harder to reduce pain once you are in the cycle of pain. Ask the nurse to give your something (ie crakers, graham crakers) if you can when you take the pain meds
10) they will probably gives you antibiotics by IV - it can sting a little - mine was every 8 hours
11) you may pass clots - its ok especially if they are removing ‘broids from the lining
12) pajams and slippers made me feel better
13) A cold towel on my tummy helped to take the “heat out”
14) My blood pressure went up sometimes (and I have no issue with pressure) depending on my level of pain…its normal
15) The lemon jello and water ice was like a gourmet meal but the clear broth (beef or chicken) is a salt-less bullion cube…yuck!
[Edited by EclecticGeek. More AM experiences can be found in the Abdominal Myomectomy thread.]
September 5, 2006 at 9:15 pm
fibroid free,
Thank you for your ramblings! I appreciate every time someone has something to share here and I know others reading this do, too. Your personal thoughts, detailed information, and humor really are helpful.
September 6, 2006 at 3:10 pm
Hi,
Just wanted to say your website’s (especially the recent comments from Fibroid Free) been a great help to me over the last few weeks. I’m a database administrator from the UK. My GP sent me for further tests 5 weeks ago, after a smear test showed my uterus to be enlarged since then I seem to have been on the fastest rollercoaster of my life with Ultrasounds, Ovarian Cancer test, MRI scan. Last appointment with the gynaecologist revealed I have a 10cm broid and am now am on waiting list for an AM in a few weeks. Reading through this has kept me sane an more prepared for what I’m going to hear and what to ask the doctors. I’m especially looking forward to the Yummy sounding clear broth !!!!
September 6, 2006 at 6:32 pm
one day to go,
I’ve been thinking of you. Realized your surgery was TODAY. I know you won’t see this anytime soon so I’ll just have to send out the positive vibes. Glad what “fibroid free” posted was so helpful. Best wishes with your recovery.
September 6, 2006 at 6:50 pm
Pixiebell,
Good to hear that the site helps. I’m happy when one visitor can help another. (Thanks again, fibroid free!) Things can get hectic with the series of tests but your resolution is around the corner. I appreciate you sharing your story. Post again if you have additional thoughts or questions.
P.S. Why is everyone “hating” on the broth?
September 9, 2006 at 12:38 pm
I was just diagnosed with Fibroids. Glad I finally have an answer as to why I am so anemic - I woke up one morning not being able to breathe, went to the ER and theygave me two pints of blood - I am so scared of my period. My last one was 16 days, lots of clots etc. I just keep taking iron (130mg a day). My question or opinion I am seeking a response to is this: I am 49, premenopausal, already had kids - should I consider a hysterectomy and something less invasive with the risk of them growing back. I was thinking i could wait 3-5 years until menopause is over, but loss of blood scares me and they will just grow. My are submucosal. (Sorry for the mispellings). I look forward to hearing from any and all. thanks for reading, Diane
September 9, 2006 at 4:53 pm
Yes, the anemia was what caused me to finally get help. I knew I had fibroids but didn’t make the connection. Walked around all lightheaded trying to figure out what was wrong. It finally got so bad, I had to go to the doctor.
With me, I wanted UFE because it was less invasive. I couldn’t have it done until I had a hysteroscopic myomectomy to take care of a couple of submucosal fibroids that would possible cause problems. My myomectomy was so minimally invasive (no incisions), it was outpatient. Both procedures have gone well and I am happy with the results.
I will leave that Mayo Clinic Treatment Guide link again because it goes through several options (hysterectomy, myomectomy, drug therapy, uterine artery embolization, and focused ultrasound as well as others). Some of my experiences can be found in the anemia, surgery, and minimally or non-invasive categories.
Look at all the options. You have many. Talk to your doctor about them. Ask questions. Get a second opinion if needed. I know this is scary but you are moving forward. You are starting to understand and take control. So, read through the information, listen to our personal experiences, and then apply what you have learned to your situation. Everyone deserves to feel better.
Post any additional questions or concerns you may have.
September 10, 2006 at 11:16 am
I’m at home now! Even though I didn’t get to read fibroid free’s post after mine everything was right on (except I did love the plain broth). The most annoying thing was the 2 hour vital checks and the 2:00 a.m. blood tests. There was no transfusion but I am no officially anemic. My blood level at its lowest on Thursday was at a 5. So they sent me home with iron pills. My first real bout of pain was as I was walking into the house crunched over in pain, my friend standing in the doorway made a comment as she took my arm about this being us in 30 or 40 years. Let’s just say I could NOT stop laughing and I had no pillow or towel on my abs so IT HURT IT HURT. Today is day two at home and I actually ventured outside and walked up and down my street twice. lowly but twice. I haven’t been in any unmanagable pain. Today I haven’t taken a percocet, just ibuprofen and my iron. I did walk bent over for a bit, today I can actually walk straight.
ElecticGeek - thank you for thinking of me. I can’t wait to see how normal my life will be after I heal. Yay
September 10, 2006 at 1:58 pm
I’m so glad you are home and in the recovery phase. It looks like things are going well. You are walking around straight and managing the pain. Hip, hip…hooray!
I appreciate you returning here so soon after your surgery and posting about your experience. It really does help others. Come back anytime with questions, concerns, thoughts, or ramblings. Take care.
(Thanks for loving the broth.
)
——————–
*Adding a note: Saw a comment today in the Feedback section about iron pills and stomach pain. Thought I would come back and stick a link here about tips on taking iron pills. (Scroll down near the bottom of the page.)
September 11, 2006 at 11:22 am
So glad everything turned out well and you are home recovering….just remember to take it easy - you had major surgery… take out time to heal and pamper yourself….
Yeah fibroids no more!!!
September 13, 2006 at 9:16 am
Hi - there, Im Bren from South Africa -
Just found out 2 days ago that i have Mutliple Fibroids - since reading these posts - have managed to link a few things I didnt think where related. Couldnt figure out why i was so huge around my tum - Would also like to know how much they weigh - My doc told me the ones i have could weigh bet 6 - 8 kgs - they are about 7×6x8 cm- if this helps- just an approx.
Thanks for all the info
September 13, 2006 at 1:42 pm
Hi,
I have a post about fibroid weight. It has formulas to calculate volume. Going from volume to weight is a bit of question mark because we don’t know the density of a fibroid but it’s a rough approximation.
For a 7×6x8 cm fibroid:
volume = 7×6x8 = 336 cubic cm
If we assume 1 cubic cm = 1g then,
336 cubic cm = 336g = .336kg = .739lb
Remember, this is just for one. Click this