(Monday, February 05, 2007) Editing this post a bit to include my experience because I’m noticing that people aren’t really reading my Related Posts at the end. Let me make a couple of points first.
Note: Please realize that you are online. By its nature, the Internet will draw women having problems with fibroids and looking for answers. Women with great Lupron treatment experiences probably aren’t posting about it online. I discovered this when looking for information several months ago. I was alarmed by the disproportionate number of negative Lupron experiences and decided to start a blog with a more balanced perspective. Hopefully, I’ve come close to that.
Second point. I have a post about the bell curve. (Actually, there are a few women on the site that mention it.) A bell curve is a very good way to think about any fibroid treatment. Some women will land on one end of the curve or the other but MOST will fall in the middle right under the bell. MOST women who take Lupron will benefit from it. MOST will have limited side effects.
Here’s my experience.
From the post that describes my first month on Lupron:
*Recap: Had a period (7 days) with clots and cramps about 2 weeks after the injection. Continued to spot every day afterward. Occasional headaches (possibly from anemia).
*Recap: Passed huge clots without cramps the day of the injection. Continued to spot every day. Passed smaller clots without cramps on several occasions. Night sweats without the sweat. Just the heat.
*Recap: Continued to spot every day. Passed tiny clots with cramps on several occasions. Hot flashes. No sweat but yes, they were hot!
So yes, when given this choice between:
- bleeding profusely, becoming more anemic, and eventually saying okay to a blood transfusion or
- bleeding some, having a few hot flashes, and no longer continuously feeling faint,
I weighed the benefits (preparation for surgery) against the risks (side effects), squared it with my mind, body, and spirit and picked #2! Three months of Lupron. No regrets.
I’ll also include the 8-page Patient Information Report for the 3.75 mg monthly injection. It’s a PDF file so you need Adobe Reader to view it.
Now, back to the original post…
One of the visitors to this site is about to start Lupron shots for 3 months. Since there have been a couple of comments about injections, continued bleeding, and side effects, I decided to create a thread to stick in the Forum. You can follow the details of my personal experience (hot flashes, night sweats, etc.) as well as read other information in the Related Posts at the end but I will include a short timeline:
1st Lupron Shot – middle of February
Last multiple day period – end of February
2nd Lupron Shot – middle of March (continued spotting/bleeding)
Last Lupron Shot – middle of April (continued spotting/bleeding)
Spotting/bleeding finally stopped – end of May
Next multiple day period – end of June
Time between my last Lupron shot and my period = 10 weeks
Time between my “periods” while on Lupron = 4 months
Excerpts from visitor posts: (Click the link to view the entire comment.)
Saragail: I’ve just completed my third round of Lupron. It’s been about 1 month and 2 weeks since my last shot, yet I haven’t started my period.
C.: I took Lupron 4 years ago and am currently searching for information about it. I still suffer memory problems from my 6 months on Lupron.
nanci: Had first lupron shot on 6/17 after having a few months of heavy periods and clotting. also had the feeling of a very full stomach. although the bleeding has basicallly stopped(still have very slight bleeding)
Have a clear understanding in your mind about why you are taking it. Know that the treatment can be beneficial but is not perfect. Make sure you have a support system that allows you to contact a health care professional with your questions.
If you have thoughts, questions, or a Lupron experience, please leave a comment.
[Edited to add: I created another post that will (hopefully) shed more light on GnRH agonists and the side effects of this drug class: Tell me about Lupron, Synarel, and Zoladex (gonadotropin-releasing hormone agonists) ]
Related Posts: (Yep, spent much time writing about my Lupron experience.)
Life under the bell curve
What the heck is a gonadotropin-releasing hormone agonist?
Get support from nurses during your Lupron treatment
Deciding on my Lupron Depot injection dosage
That first Lupron injection in February
My second Lupron injection in March
The very last Lupron injection in April
Lupron is neither heaven nor hell
Iron pills, Lupron injections, and the return of little Miss Perky