The real issue with fibroids

Been blogging here since May 2006. There is something I’m noticing and it is my responsibility to bring it to the attention of all.

The sum total of YOUR existence (mind/body/spirit) will carry you to the point of your medical decision. Just because you wouldn’t choose a particular fibroid treatment option, please don’t pretend it doesn’t exist or say words that would take it off the table for another woman. If you want someone to walk in your shoes, you have to be willing to walk in the shoes of others.

This fibroid issue is so much bigger than the choices you would make. You can relate to any other woman on this site (regardless of the topic) because we are all dealing with uterine fibroid tumors. I do it EVERY SINGLE day. I do not allow the choices I made (and continue to make) stop me from talking to women who have chosen differently. Sometimes, this just amounts to me telling them they aren’t alone. I don’t understand why many of the women who comment here cannot do the same. We have to unify globally and support each other. Until we can come together, don’t expect others who aren’t directly connected to this medical condition to give a damn. That, my happy, dysfunctional fibroid family, is the real issue.

I’m not doing this to please any one woman. I am committed to this blog and my other fibroid-related projects to bring attention to the problem. Don’t take it personally if I step on a few toes along the way.

The needs of the many outweigh the needs of the few.

They really, really do.

——————–

Related Post:

Once again, I ask that you go into the Forum or wander around the site and find other posts where you can add comments. Thanks!

Advertisements

9 Responses to “The real issue with fibroids”

  1. fibroid free Says:

    Amen to THAT!

  2. Sunday Says:

    Agreed!!

  3. Cordelia Says:

    Well said !

    Since there are such a large percentage of women that suffer from it, how come most of us never heard of it until we were affected ourselves?

    This condition definitely needs to become better known!

    PS, did you know that fibroids are much more common with black women? Apparently it is so common among them that people who are not affected themselves have often heard about the condition due to a relative having been affected. How odd – I suppose it must be something genetic involved then?

  4. Rowe Says:

    It’s been a few days since my UAE and I’m still feeling wonderful. I do know the UAE is working since I do feel a slight pain-like feeling similar to a cramp in my right side occasionally, but that’s about it.

    I agree that every women needs to understand all the options available to her and then make an informed choice. I would even go so far as to recommend women go to a couple of Interventional Radiologists first to get information from them before seeking treatment options from obgyns since with my experience the obgyns just wanted to do surgery – they didn’t even mention drug treatments, HIFU, or UAE. Thank goodness for the internet where I found this information.

    Happy – still

  5. Big E Says:

    I wish that there were some kind of method to use outside of the medical machine.
    I do not have health insurance and suffer greatly.
    does anyone have any ideas on how to deal with the pain?
    All I want to is curl in basic fetal but have to support a family.
    Time off is only for the boss.

  6. Aja Says:

    Hi Big E,
    Ibuprofen, and I also found some relief from taking calcium and magnesium during my periods (I found a good mixed pill at Trader Joe’s) — but it depends on what is causing the pain of course!

    Good luck!

  7. Lynne Says:

    Hi Big E,

    Yes, it’s really hard isn’t it. But we do what we have to do and hope we come out the other side…

    The tough part isn’t only the pain, it’s the blood loss, which causes anemia, which causes difficulty thinking straight! I’ve lost two jobs, which in retrospect, I don’t think I would have if I’d been as sharp as I was pre-anemia….

    Hang in there, do the best you can, don’t be afraid to ask for help, and take as much care of yourself as you can.

  8. Lara Says:

    Hello my name is Lara, am only 25 and i have been diagnosed with uterine fibroids.. I have 3 of which 1 is 10cm in size..I will be starting the hormonal injections soon and I am actually really scared. It would be really nice to hear some of your personal pre-operative experiences and how you felt after each shot of the drug..

    Thanks

  9. Amy Says:

    Hey Lara,

    This blog was not working for a while, but should be now. But this particular page doesn’t get a lot of people.

    If you read this and are still interested, try asking your question on:
    http://blog.geekwithfibroids.com/2006/09/24/how-are-you-feeling-after-your-lupron-injections-any-side-effects/


Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out / Change )

Twitter picture

You are commenting using your Twitter account. Log Out / Change )

Facebook photo

You are commenting using your Facebook account. Log Out / Change )

Google+ photo

You are commenting using your Google+ account. Log Out / Change )

Connecting to %s

%d bloggers like this: